If you look at the face and peer into the eyes of a person with Rett syndrome you can get a great sense for their character and personality. Conversely, it’s been said that a person with Rett syndrome can “see into your soul”. That is what makes this inspiring video so special.
The video was a gift for clinicians and researchers from those who took part in the IRSF Natural History Study in Chicago since 2006. The purpose of this study is to establish a phenotype-genotype correlation over a broad spectrum of Rett syndrome phenotypes including the longitudinal pattern of progression of clinical features, quality of life, and longevity across this cohort. For more information about this study click here.
The video is so good we had to share it with a broader audience. The views that photographers enjoyed during precious moments in time are truly spectacular! Kudos and thanks to those responsible for the photos and video.